An application was received for help to fund a ceiling track hoist for a lady who has been living with Multiple Sclerosis for the last 30 years. The lady has sadly become unable to weight bear, has limited movement from the neck down and struggles with her speech. The provision of the ceiling track hoist is vital to enable her to remain in her own home with her family who have cared for her all the years since her diagnosis and also to prevent her newly engaged carers from injuring themselves when transferring her. ACT were pleased to be able to pledge a donation of £1,500.
£1,500 for Ceiling Track Hoist
£5K for Scotts Project Trust
Scotts Project Trust's vision is that people with a learning disability should be supported to gain the confidence and independence they need to lead fulfilled happy lives. The Trust supports people through three interlinked services; St Peter's Row, their residential care home near Tonbridge, a supported living service and an on-site development centre. They applied to ACT for help to refurbish two bathrooms at their St Peter's Row care home which accommodates 15 people. The bathrooms had not been updated for 15 years and had deteriorated through normal wear and tear however, additionally, the needs of their residents had changed with wetrooms and accessible showers deemed to be more appropriate in terms of safety and hygiene. It is vital to allow those requiring high levels of support to preserve their dignity and ACT were pleased to be able to pledge £5K to the refurbishment.
£2,500 for Wall Padding
We received an application from the mum of a 5 year old girl who wished to apply for soft padding to the walls of her daughter's bedroom. The little girl has autism and sensory processing difficulties and is prone to seeking movement such as jumping, spinning and climbing. Unfortunately she does not sleep through the night and much of this activity takes place when she is unsupervised, with her climbing on top of her radiator and window ledge to jump off. This is obviously dangerous and destructive and her Occupational Therapist has recommended padding to go around the radiator pipes and the door as well as the floor and walls. Provision of the soft padding will ensure that the little girl retains her independence in her own room but is kept safe. ACT were pleased to be able to help out with a donation of £2,500.
£2,500 Pledge for Standing Powered Wheelchair
We received an application from a 21 year old lady who has the muscle wasting condition, Spinal Muscular Atrophy type 2. The lady is wheelchair dependent having been unable to stand since the age of 9. She currently works for 25 hours a week and is able to drive herself in her wheelchair adapted vehicle to and from her place of employment. Her OT recommended that she would benefit from a standing wheelchair which will help her to maintain her strength throughout the day and also assist her in her work and ACT were delighted to add to her wheelchair voucher and help her on her fundraising way.
£3K for Meningitis Now
Meningitis Now is a registered charity that helps those who have suffered the devastating effects of this disease. Meningitis is aggressive, it strikes in an instant and can cause loss of limbs, brain injury, epilepsy, learning difficulties and memory loss. The charity's vision is for a future "where no-one in the UK loses their life to meningitis and everyone affected gets the support they need to rebuild their lives". Their application to ACT was specifically for help to support a new initiative "Believe and Achieve" which is aimed at children and young people to help them overcome the challenges they face after meningitis, rebuild their lives and go on to achieve their unique potential. ACT were delighted to pledge £3,000.
£5K for The Pendragon Community Trust
The Pendragon Trust, a registered charity based in North Yorkshire, was set up 15 years ago by a group of parents, carers and committed professionals who realised, through their own personal experiences, that there was a huge gap in facilities for people with profound disabilities, particularly once they were past school age. In January 2013 after years of fundraising they purchased a building in Northallerton to convert into a multi-sensory Centre which will provide a safe development environment, capable of accommodating all ages and all levels of disability. The Centre will have a multi-sensory space, a smaller room for "one to one" work, an interactive ball pool and slide, projection, sound & light technology and a cafe area. They are also working together with the district council to create an outdoor sensory area. The Centre will offer a wide range of therapies, including sensory exploration, physiotherapy and carers support groups. It is hoped that having the Centre will help to reduce feelings of isolation for disabled people and their carers and provide them comfort in knowing there are support services available to them and with over 9,300 people with profound disabilities in North Yorkshire the Centre will be well serviced. ACT were very pleased to be able to help with a contribution towards the sensory equipment they require.
£300 for an Epilepsy Alarm
An application was made to us by the mother of a 4 year old girl for help to fund an epilepsy alarm. The little girl has a learning disability and many other complications, as well as epilepsy, that require a high level of care and supervision. She has significant sleep difficulties and needs round the clock supervision during the night in case she suffers a seizure. The alarm entails a sensor being placed under her mattress which constantly monitors movement and will trigger an alert if it detects movement consistent with a seizure. If a seizure is detected, the control unit will send an alert to a pager so that her parents can provide immediate assistance. ACT were pleased to be able to make a donation to this vital piece of equipment that will hopefully provide the family with some peace of mind.
£500 Pledge for Body Pillow
An application was received for a vibro acoustic body pillow for a 4 year old boy. The little boy who has a diagnosis of autism recently underwent surgery on his spine for a spinal compression resulting from an arachnoid cyst which was affecting his mobility and balance. The foam edged pillow is filled with beans that mould to the body to hold the user in place and the built in speaker sends out vibrations that are ideal for relaxing tight muscles and stimulating circulation. This pillow will provide comfort following his surgery and will help with the development of his sensory awareness. ACT were pleased to be able to pledge £500.
£2,350 Pledge for Mobility Aids
The Kent MS Therapy Centre is the only dedicated therapy Centre in the south and east of Kent. It supports people suffering with Multiple Sclerosis and provides a range of non-invasive therapies which help to relieve the symptoms of MS thus improving quality of lives. The Centre does not benefit from any government or NHS funding and is reliant on charitable donations and fundraising activities to continue their vital services, currently accessed by 590 members. The charity's application to ACT was for a "Sara Stedy", a piece of equipment to help with the moving and handling of people with limited or impaired mobility. Many members feel very confident using this standing aid and it enables them to access the bathroom facilities at the Centre and alleviates anxiety. ACT were delighted to pledge funding for 2 aids.
£2K for resources for children with mental health issues
MedEquip4Kids is a registered charity that aims to improve the health of children and and babies by providing equipment that is not available from the NHS's limited resources. For the past year they have been fundraising to support Child and Adolescent Mental Health Services (CAMHS) to help to improve the mental health of affected children across the UK. CAMHS work with children with conditions such as autism, ADHD, depression, eating disorders, self-harming, anxiety and many more. The work CAMHS does can be life-changing however the rising demand for their services has left them seeking funds for vital resources such as communication aids, reference books, stress toys, etc. which they rely on as part of their therapeutic work to engage the children. ACT's £2K pledge will help to support this vital work.